September 25, 2017
College Park Marriott / Hyattsville, MD

Meeting

The Lupus PFDD Meeting was held on September 25, 2017 in Hyattsville, MD and was an incredible gathering of people with lupus, their representatives and loved ones, and other members of the community. The meeting included panel remarks and comments by people with lupus as well as presentations by representatives from the Food and Drug Administration (FDA) and physicians. We thank the lupus activists from across the nation who attended the meeting in person or tuned in for the webcast. To view a recording of the meeting, click below.

 

Submit a Comment

If you weren’t able to attend the meeting or did attend but didn’t get a chance to make a comment, we hope you will submit a comment to the public docket. To do this, please follow these steps:

  1. Draft your comment with your thoughts on or experiences with lupus including symptoms, the impact of lupus on daily life, current therapies, and what you would like to see from future therapies.
  2. Email your comments (in the body of an email or in an attachment) to [email protected] Make the subject of your email “Comment for Public Docket.”
  3. Send in your comments by Friday, October 6.

We will use your comments, as well as the content from the meeting and the data from the survey, to inform the development of the Lupus: Patient Voices report, to be published later this fall. Please join your fellow lupus activists from all across the nation and take action to help make a difference in the lives of those with lupus!