A successful Lupus PFDD meeting begins with YOU!
If you have lupus or are the parent of a child with lupus, we urge you to make your voice heard by sharing your lupus experience and what matters most to you when it comes to lupus drugs. By donating your time and input to this incredible project you will inform Food and Drug Administration (FDA) officials as they make decisions about future lupus treatments. Please join your fellow lupus activists from all across the nation and take action to help make a difference in the lives of those with lupus!
Here’s how you can participate:
- Take part in the actual meeting by attending in person or joining virtually through the online webcast. The Lupus Patient-Focused Drug Development (PFDD) Meeting will be held Monday, September 25 at the College Park Marriott Hotel and Conference Center in Hyattsville, MD (just outside of Washington, DC) and includes opportunities for people with lupus to provide input on patient panels and during facilitated discussions and in an open comment period. Your voice matters!
- Tell your lupus story by taking the online survey and you will have the chance to share your unique perspective with the FDA and drug companies on living with lupus, what concerns you most, and your views on new treatments. The survey will collect information to assist in the planning of the September 25 meeting and in the development of a report to the FDA afterwards. The impact of the survey and the report depends on you telling your story. Your contributions are critical! Note: the survey is now closed.
Your input as a person with lupus is extremely valuable and important to the success of this project. Please do not miss out on this amazing and unique opportunity to be a powerful lupus activist and to help drive lupus drug development forward with your voice. We encourage every person with lupus to take action now by completing the survey even if you are unable to participate in the meeting. We greatly appreciate your time and efforts.